|  |  |  | | | | Diseases | |  | Chronic Lymphocytic Leukaemia Links |
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| | This page provides links to websites and resources which we feel may be helpful. The linked sites and resources are not under Leukaemia Research Fund control and we cannot accept responsiblity for content. Occasionally, the nature of pages found at a web address will alter drastically; if you become aware that this has happened, please let us know at medicalinfo@lrf.org.uk
CLL incidence data from US National Cancer Institute
Study on Familial Chronic Lymphocytic Leukaemia
Around 10% of cases of CLL are thought to be familial in nature. A major study of this subject is underway at the Royal Marsden Hospital - details can be found on the project web site at:
http://www.icr.ac.uk/haemcyto/fcll/index.html
CLL Topics
CLL Topics described in their own words. .......This site is dedicated to providing information and support to patients and families dealing with chronic lymphocytic leukemia (CLL). It takes a clearly patient-oriented view of the world. The subject matter is focused on current developments in understanding and treating the disease.
Learn about CLL - This site offers useful information on CLL but be aware that it is provided by the manufacturers of fludarabine (Fludara), so do not expect comments on treatment to be unbiased.
Campath-1H - This site is provided by the manufacturers of Campath - it offers useful information but again is unlikely to be objective about the benefits of Campath.
CLLSA is an exciting new charity formed in August 2005 by a group of four CLL patients who initially made contact over the internet. The main aim of CLLSA is to provide help and support for patients with CLL (and similar related conditions) and their carers.
As a new charity we are not yet registered with the Charity Commission but we have an application in progress and hope to have our own registered charity number very soon.
Initially we aim to provide:
> A contact list of Consultants in the UK who specialize in CLL
> A comprehensive list of useful websites and sources of information on CLL.
> Latest news and developments in CLL.
> Regular patient meetings.
UK CLL Forum in their words - The UK Chronic Lymphocytic Leukaemia Forum has been created specifically for the patients, families, friends and carers of those diagnosed with CLL within the United Kingdom. We recognise the specific needs and wishes of these members and have designed this website to satisfy this criterion.
Granny Barb and Art's Leukemia Links - CLL - GrannyBarb and Art are two leukaemia patients (one could never describe them as passive sufferers) who together have created and maintain a superb leukaemia information resource.
Sadly, Barbara Lackritz (GrannyBarb) died in June 2003. She was a wonderful inspiration to patients everywhere and an indefatigible campaigner. Despite having an exceptionally aggressive form of the disease, she lived her life to the full for 15 years after her diagnosis. She will be missed deeply by all who had the privilege to meet her, and by many others who knew her only through the web.
CLL Research Consortium - The CLL Research Consortium is a multi-institution research program sponsored by the National Cancer Institute to study chronic lymphocytic leukemia (CLL) in an entirely new way.
CLL Foundation - (US organization) - The Foundation has as its main objective to fund research directed to finding a cure for Chronic Lymphocytic Leukemia (CLL). The Foundation has as its main objective to fund research directed to finding a cure for Chronic Lymphocytic Leukemia (CLL).
CLL Information Network - US based
 | Internet Mailing Lists |
CLL Chronic Lymphocytic Leukemia (2,242 subscribers)
CLL-CN Canadian CLL List (145 subscribers)
CLL-UK UK List (24 subscribers)
The CLL FAQ was created and is maintained by CLL List member Dave Thomas.
| Leukaemia CARE | | | Address: | One Birch Court, Blackpole East, Worcester, WR3 8SG | | | Telephone: | 0800 1696680 | | | Email: | info@leukaemiaCARE.org.uk | | | Website: | http://www.leukaemiacare.org.uk/ | | | Leukaemia CARE, caring for sufferers of the leukaemias, Hodgkin's
and other lymphomas, myelodysplasia, myeloproliferative disorders, Myeloma and aplastic anaemia |
Chemotherapy screening test
Bath Cancer Research undertakes a laboratory test (the TRAC assay; was the DiSC assay) on fresh leukaemia or lymphoma cells to identify which drugs are most likely to be of benefit to the individual patient. They have been doing research in this area for over 20 years, particularly in chronic lymphocytic leukaemia (CLL), acute myeloid leukaemia (AML) and non-Hodgkin's lymphoma (NHL).
Last updated 02/06/2008 |
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